When I was pregnant with him, I was sicker than I’ve ever been in my life. I read all the books, studied up on exactly how he was developing and growing. We dreamed about what this little baby would be like when we were able to finally meet him, like all parents-to-be surely do. When I held him for the first time I was on so many drugs from the c-section, but I distinctly remember the overwhelming and crushing tidal wave of love I had for this boy.
Watching your child grow and learn to crawl, and walk, and do all the miraculous everyday things they do is – in a word; incredible. Going through the sleepless nights, the endless days of diapers and feedings that feel like every day is groundhog day – all of it in hindsight seems to pale in comparison as we move into new phases of hard.
We’ve always known, really.
From the time he was two and half and cowering under a chair in the doctor’s office, when he still didn’t have any words at three, and stuck to the sign language and the mother/son way of communicating that we had developed, the way he speaks without consideration of volume and personal space, the rigidity of thought, and the extreme meltdowns when plans were not executed in the way they were supposed to be; we knew deep down. We’ve met with professionals, each reluctant to give us the official word for various reasons.
He’s not like other kids. He’s different.
He will eat the same 4 things every single day. For 5 years. Change to routine is hard. As a military family, moving is very challenging under the best of circumstances, it becomes chaos at times for us. Florescent lights in retail stores and the constant over-stimulation while shopping overwhelms him to the point of meltdown. Outsiders only see a bratty kid having a tantrum, because well, ‘he looks normal’. For the record, a meltdown is not a tantrum. While my heart is breaking trying to deal with his inability to deal with life, a stranger will mutter cruel and unwanted “advice” as they walk on by. This has happened more times than I can count.
It’s hard to watch your kid realize that he is different.
It’s hard to see him recognize that he doesn’t have many friends.
It’s hard to explain to him that to have friends, there has to be a give and take. He simply doesn’t have the social tools.
I cringe when people meet him for the first time and the wave of realization that he is different crosses their face.
I fluctuate between denial and harsh reality.
I’ve been living in the denial land of “he’s just a little different” and “maybe he will outgrow it”. We didn’t need a label before, but things are changing. Last night we met with his teacher at his new school. The first two weeks have been bumpy. He’s cried in class multiple times. He’s having a hard time adjusting. He is a quick learner and can do the work, but lacks the social skills for his age. He needs tools that a diagnosis will provide.
My heart breaks for his struggling little self.
It’s time now.
He’s different. He’s a kid who falls on the autism spectrum. And it’s okay.